Showing posts with label emotions. Show all posts
Showing posts with label emotions. Show all posts

Wednesday, May 13, 2015

What Barbara Turnbull said about rehab and grief

By Louise Kinross

In 1983 Barbara Turnbull was shot during a robbery at a convenience store where she was working a night-shift as a Grade 13 student. Last Sunday, The Toronto Star, where she worked as a reporter, wrote that she had died at age 50 as a result of complications from pneumonia.

Barbara gave a fabulous talk at Holland Bloorview in 2002 about her 18 months in rehab and how she learned to navigate the world with quadriplegia and a lot of technology. I wrote about it in our staff newsletter at the time.

What jumps out at me as relevant today was a comment she made about professionals not allowing her to express her grief. "At one time, when I was going through the worst depression, a nurse said 'If you're not careful, people aren't going to want to be around you,'" she recalled. "It had such a devastating impact on me, because I felt I had to be upbeat for people or else I'd end up alone."

Holland Bloorview scientist Barbara Gibson spoke to BLOOM recently about how therapeutic environments may send the message that negative emotions are to be repressed. "Sometimes patients are made to feel that they can only express positive emotions with professionals," she said. "You know, 'we're all cheerleaders here.'"

I thought that was an important message to keep in mind.
What Barbara Turnbull told us she found most helpful during her rehab was talking to people with acquired disability who were further along in the journey and could encourage her and offer practical advice.

Photo by Toronto Star photographer Lucas Oleniuk

Thursday, April 23, 2015

Schwartz Rounds uncover the heart of healthcare

By Louise Kinross

As a parent, how do you define compassionate care? Have you ever broken down when describing something troubling about your child and their care?

If so, what reaction from the clinician made you, as a parent, feel cared for?

Earlier this month Holland Bloorview was the first hospital in Canada to partner with Boston-based
Schwartz Center for Compassionate Healthcare.

The Schwartz Center is a non-profit organization that’s developed the
Schwartz Center Rounds to give hospital employees an opportunity to share the emotions they experience when working with patients and families in the most challenging situations. The goal is to bring the humanity back to healthcare. More than 375 health facilities in the U.S. and about 100 in the U.K. are conducting Schwartz Center Rounds. Caregivers report that the program increases their empathy for patients and families and better prepares them to meet patients’ needs; improves teamwork; and decreases stress and isolation.

Non-identifying patient cases are presented and caregivers share their experiences confidentially.

At Holland Bloorview’s first Schwartz Center Rounds session, staff noted that their training hadn’t prepared them for some of the painful situations they face in supporting parents whose children have experienced life-changing trauma.

“How do you maintain your emotional composure?” asked one clinician. “Do you maintain your emotional composure? And why do I feel that I have to do that?”

Has a professional caregiver demonstrated compassion in a way that you found helpful? Please share your stories.

Wednesday, March 14, 2012

Worry






















"When we move in jagged and hurried ways, it becomes impossible to see, recognize or drink deeply from any beauty, wonder, or grace in anything or anyone in our path.

Worry comes with an implicit promise that abiding in its company will ensure that our problem will be solved -- that we can somehow actually worry it away, fix it before anything bad happens. But worry is a false promise, a Trojan horse, a wolf in sheep's clothing. While neither healing nor repairing anything at all, it saturates us with stress and uses all our attention to project fear and weakness into every possible future disaster.

More importantly, worry steers us away from trusting in our own essential wholeness, wisdom and strength to be able to handle, in the moment, whatever we are given."

A Life of Being, Doing and Having Enough, Wayne Muller, 2010

Tuesday, March 13, 2012

How it feels on the inside














I was struck by the honesty of some recent posts about parenting children with complex developmental and/or medical needs.

6 things you don't know about a special needs parent, which was apparently inspired by

5 things you should know about a special needs family

How we do it: Part IX in a series

Unfair monsters