BLOOM spoke to Cheryl about how she approached life knowing that Jordan would likely die young.
Early on I got rid of any negativity around me—any doctors, nurses or therapists who were negative. I surrounded myself with a core of doctors—the complex-care doctors at SickKids and a neurologist—who knew and saw him as a little boy. Then when he became an inpatient, I could call on those doctors.
Once he had his cochlear implant and could hear, he was quite fussy about watching cartoons. He played with our neighbours—they have a two- and three-year-old and we’d bring him over to their house. We did lots of neighbourhood and city stuff. He was very smart and very particular and stubborn and also mischievous. He had a huge pouty face and a googly little grin.
I wasn’t trying to fix him. He had a brain injury and I wanted him to enjoy his life. That was more important to me than therapy.
When Jordan was a baby I went to hear one of your BLOOM speakers. And there was a young woman there, Crystal, who said that when she was young, she didn’t know swimming was for fun. She thought it was just therapy. It broke my heart, because I didn’t want Jordan to ever feel that way. That was one of my turning points. When you’ve almost lost your child, it changes your focus.
Jordan with a "mini-me" made by Feel Better Friends