Friday, December 21, 2012
Scott Lentine, 25 (above), is a college graduate interning at the Arc of Massachusetts. He loves dogs. In his work, Scott advocates for disability legislation to improve the lives of people with developmental disabilities. Scott has Asperger’s and writes about his experiences in poems. I asked him what five things he would share with parents raising younger kids with autism. Thanks Scott! Louise
Five things parents should know about autism
By Scott Lentine
1. Autism is not correlated with violence. I say this in the wake of the Newtown, Conn. tragedy.
2. People on the autism spectrum can have a wide range of emotions and attributes.
3. Not all people with autism are lonely.
4. People with autism can have diverse interests in subjects and hobbies.
5. Parents should try their best to find the appropriate doctor and psychologist to make their lives happier. Treat your child with warmth and kindness. Using fidget toys and sensory-integration tools can help soothe tensions in the child with autism. In addition, parents could help find friends for their child: kids who might have similar interests and who are sympathetic to the child with autism. The friend can be on the spectrum or neurotypical. I do wish I could have had more friends when I was younger.
I also asked Scott what he had learned during his internship at The Arc.
“I learned that people with developmental disabilities often do not get proper public services or health care after turning 22 and formally leaving the public educational system. There needs to be universal health care (physical and mental) for people on the spectrum and they should not be denied insurance coverage.
“I tend to view the autism community as a new civil rights movement similar to that of African Americans and LGBT citizens. There definitely need to be more songs about autism. Perhaps, people like Neil Young, Joan Baez, Judy Collins, Bruce Springsteen, Bob Dylan, Peter Yarrow, Pete Seeger and Tom Waits could do songs about this subject. It would also be great if Hollywood did a movie on the life of autism activist and physician Dr. Margaret Bauman. I saw her when I was a child in the 90s in Lexington, Mass.
Below is one of Scott’s poems:
Just a Normal Day
Never knowing what to say
Never knowing what to do
Always looking for clues
Just a normal day
Totally perplexed with everyday life
Always on edge never certain
I wish I could lift this curtain
Needing to constantly satisfy my need for information
Always online searching for new revelations
Going from site to site
Obtaining new insights every night
Trying to connect with people my age
Attempting to reveal my unique vision
But ending up alone and unengaged
Feeling like my life needs a total revision
Just a normal day