Friday, February 18, 2011

Quick update

I was fascinated by this blog by Gina Gort who took a 10-day 'retreat' away from her family, which includes three children, two of whom have disabilities: Return to myself. It sounds wonderfully restorative.

We are holding a planning day for Ben on April 9 with the help of facilitators from Community Living. This is a two-hour session where we bring together some key people in Ben's life to look at his strengths and dreams and how we can support him in leading a rich adult life. If you've done this kind of planning, do you have any tips on preparing?

This is an interesting interview about the ethics of prenatal testing for Down syndrome. It's between Dr. Brian Skotko, a clinical fellow in genetics in the Down syndrome program at Children's Hospital Boston (who has a sister with Down syndrome), and Dr. Lachlan Forrow, director of ethics at Beth Israel Deaconess Medical Center.

Happy weekend! Louise