Wednesday, December 19, 2018

'What you learn about silence is that it's not so quiet'

By Louise Kinross Craig Morgan Teicher is an American poet and literary critic whose first collection of essays—We Begin in Gladness—was published in November. Earlier this year he wrote an essay in The New York Times about what he’s learned by reading aloud with his son Cal. Cal, 11, has cerebral palsy and doesn’t speak. We talked about communicating beyond, or outside, language. BLOOM: What are Cal’s favourite things? Craig Morgan Teicher:...

Monday, December 17, 2018

This nurse earns high praise from kids

Lisa Drumonde is a registered practical nurse working with children who are hospitalized at Holland Bloorview for rehab after painful bone surgeries or life-changing trauma. She recently won the DAISY award, which recognizes a nurse that uses a strengths-based approach and combines top-notch clinical skills with deep connections with children and families. Lisa Drumonde began work almost 22 years ago at what was then the Bloorview Children’s...

Thursday, December 6, 2018

Music therapist helps create moments of joy

By Louise KinrossEunice Kang’s music career began at the age of three. Her mother was a professional pianist, so “there was no choice for me not to go into the music field,” she says, laughing. Eunice has a university degree in violin performance from South Korea, and spent her 20s travelling the world as a professional violinist. Eunice came to Canada to study music therapy at Wilfrid Laurier University and volunteered at Holland Bloorview while...

Friday, November 30, 2018

Poetry 'is a type of magic' for me

By Louise KinrossNikoletta Erdelyi is a project coordinator at York University who works with academic advisors in all faculties to improve the way they support students. She’s also a writer, actress and artist. One of her art pieces is in an exhibit called 18 | eighteen at Holland Bloorview. It pairs the grey, sterile X-rays of her childhood with a whimsical poem about her vibrant life outside the hospital. Befriending Skeletons is part...

Monday, November 26, 2018

Dads find Snoezelen pool a relaxing place to share ideas

Photos and story by Louise KinrossLewis Tolensky has been taking his son Seth swimming at Holland Bloorview’s Snoezelen pool since he was one.When the lights are dimmed, the small, heated therapy pool becomes a soothing environment where large balls bob in the water and change colour, a kaleidoscope of butterflies is projected on the wall, and classical music plays.Lewis is part of an informal group of dads who bring their kids at the same time.“They...

Wednesday, November 21, 2018

A brother's illness inspires teen to 'cherish every moment'

By Louise KinrossVanessa Williams, 18, has spent three years on the Children’s Council at the Hospital for Sick Children and last year she chaired the group. SickKids has always been a part of Vanessa’s life, as her older brother Daniel has sickle cell anemia—a condition in which a person’s red blood cells are shaped differently. This makes it easy for the cells to stick together and block off small blood vessels, causing pain and organ damage.As...

Friday, November 16, 2018

A child's unhappiness, not diagnosis, most strains families

By Louise KinrossUnhappiness and worry in children with disabilities is the most significant predictor of negative impact on family wellbeing—regardless of diagnosis—according to a study published last month in the Journal of Intellectual Disability Research. Over 200 Canadian parents of children with disabilities like autism, cerebral palsy and intellectual disability filled out surveys about their child’s function, behaviour and emotions, and...

Tuesday, November 13, 2018

'Endangered Syndrome' ad sparks controversy

By Louise KinrossHave you seen the new ad by the Canadian Down Syndrome Society? Young adults with Down syndrome dress up as pandas, polar bears and lions to suggest that, like these endangered species, their well-being too is threatened. At endangeredsyndrome.com, the group shares why their existence is precarious: births are falling, 65 per cent are unemployed, and one in four live in poverty. They note that animal welfare organizations have 90 per cent more funding than Down syndrome organizations in North America. You can read the...

Thursday, November 8, 2018

'Cancer throws you in the deep end'

By Louise Kinross The other day I saw the image above on social media and clicked on I draw childhood cancer, a Facebook page run by Angus Olsen. Angus, who lives in Australia, is trained in animation and began drawing his experiences when his daughter Jane was diagnosed with an aggressive cancer in 2016 at age 2. “It was a way to visualize the unspeakable,” he says. Since then, parents of children with cancer worldwide have written to say...

Wednesday, November 7, 2018

'Learn from each other's heart' is cartoonist's message

Illustrations ©Graphic Universe™, a division of Lerner Publishing GroupBy Louise Kinross  My Beijing: Four Stories of Everyday Wonder is a magical watercolour children's book by Chinese master cartoonist Nie Jun. This is how Kirkus Reviews described the book: "A young Chinese girl and her grandpa navigate life's challenges and joys in a small neighourhood [known as a hutong] of Beijing. In this graphic-short story collection, the author...