tag:blogger.com,1999:blog-447392662850613354.comments2024-02-25T10:24:30.868-05:00Special needs disability parenting BLOOMBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4780125tag:blogger.com,1999:blog-447392662850613354.post-50877219148761014252019-07-27T13:08:47.578-04:002019-07-27T13:08:47.578-04:00My son was born a blue baby due to his pulmonary v...My son was born a blue baby due to his pulmonary valve being closed. He was left in an incubator for 2 days before a specialist was brought in. He, and his incubator, were taken by ambulance to the children’s hospital. He had heart surgery at 3 days to save his life and another at 14 months. I believe he had hypoxia which caused him to have cognitive impairment. Although he looked “ normal” he struggled his entire life and I advocated relentlessly. Later he became addicted to heroin so here I am, 44 years later still advocating. I have survived cancer twice and have several other conditions.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-51982167239248747792019-07-26T14:14:30.791-04:002019-07-26T14:14:30.791-04:00This is a wonderful piece of work that every profe...This is a wonderful piece of work that every professional and parent should read. As a parent of a disabled child, I certainly have been too focused on therapy at times and I find, now that my son is getting older, that we spend a lot more time just being. His life won’t look like a success in conventional terms but it will always be rich and full and successful on his own terms.AndreaGhttps://www.blogger.com/profile/11306793895724855392noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-70804686832347281092019-07-16T14:16:00.495-04:002019-07-16T14:16:00.495-04:00I think my thoughts lie somewhere in the middle. I...I think my thoughts lie somewhere in the middle. I think there are opportunities for learning within a school that require people to think outside of the box. Having the chance to work on life skills and practice tasks that benefit development and future employment is sometimes better than having a child sit in a pre-calculus class with their peers just to be "included". This is especially important in high school as kids are working towards university and post secondary employment. I want my child to learn how to handle money, how to plan a trip to the grocery store, how to organize things, practice time management with various tasks . . . . I don't want them to go to school for an education and come out with a piece of paper that says they sat through all the required classes with their peers.I want them to actually learn and develop skills and doing everything the same way as their "typically developing" peers is not going to achieve that. Difference is ok. Inclusion is not assimilating everyone in the same box. There needs to be a happy medium between inclusion and requiring children with disabilities to be like their peers and do everything the same way their peers do. Do I think kids with disabilities should be washing the toilets and just doing dirty laundry . . . . no, of course not. But do I think that creative programming could have them integrated with their peers and also working on their own individualized plan. Absolutely. <br />The key is in the programming and progressing the tasks within the program as goals are achieved. We have no special Education schools in my province. All children of all abilities attend school together with accommodations, modifications and individualized planning when needed. I can understand the views on each side and think that maybe the answer lies somewhere in the middle. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-27088541146608911422019-07-08T01:11:38.139-04:002019-07-08T01:11:38.139-04:00I agree with the lady who wrote this ! I have a 10...I agree with the lady who wrote this ! I have a 10 yr old daughter with Phelan McDermid Syndrome an autism ADHD ADD an OCD . My health has declined over time drastically. I don’t have time to take care of myself . I’m also mentally exhausted. They don’t care nor do they understand how hard it is on us Mother’s to care for our disabled children.MWhttps://www.blogger.com/profile/01092382455169190004noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-78572317591342985812019-07-05T14:41:58.357-04:002019-07-05T14:41:58.357-04:00As I get older, I realize how both my physical and...As I get older, I realize how both my physical and emotional states have been affected by caring for my son, working part time and then full time as well as caring for my husband who suffers from depression and also had cancer. The amount of advocacy required to get any support for home care or financial help is ongoing. I am sure I suffer from PTSD as well as stress related physical issues. I love my son, but the author is correct when she says mothers are praised and put on pedestals but practical help would serve as more!DLhttps://www.blogger.com/profile/06542807145245508483noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-44630414854773046782019-07-05T11:35:25.496-04:002019-07-05T11:35:25.496-04:00I totally agree with everything she says here . My...I totally agree with everything she says here . My daughter whom has 3 children, one is 10 yrs old with severe Spina Bifida who all live with me so I can help with my granddaughters care. My daughter needs hernia surgery , except she doesn’t have the down time. I thank God everyday for my health and strength to help with her and lifting a 60 lb. child everyday. <br />She is a blessing 🥰But it’s hard❤️Debbie/Mimihttps://www.blogger.com/profile/18427214201848597202noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-13310598703122908442019-06-22T19:14:45.383-04:002019-06-22T19:14:45.383-04:00Excelente el reportaje a la Lic Silvia Souto. Logr...Excelente el reportaje a la Lic Silvia Souto. Logra transmitir con claridad el trabajo comprometido que realizan en equipo en el hospital . Felicitaciones.<br />FABIANA VASTInoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-81798755195426666812019-05-23T11:17:51.105-04:002019-05-23T11:17:51.105-04:00It is wonderful to work with you Jo - what a great...It is wonderful to work with you Jo - what a great interview, and thank you for always being a great detective at reception :)Melissa Nnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-53830200408713265852019-05-16T11:57:40.730-04:002019-05-16T11:57:40.730-04:00 Payal I love this quote and want to highlight the... Payal I love this quote and want to highlight the importance of Peer Support and its positive impact on both parties. Well said. “When we go to the hospital or school, the focus is on the child’s disability and what’s wrong. I want to change the lens from what’s wrong to what’s strong? If a child has some innate abilities and strengths, let’s focus on those. The parents I spoke with said they believe their children have abilities that can be built upon. They’d like to see their child sharing their skills and feeling good about themselves, as opposed to always being at the receiving end of a support person or therapist or care worker. They feel their children can not only receive learning, but impart it as well.”Meenu Sikandnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-91186697214060478982019-05-14T00:02:50.830-04:002019-05-14T00:02:50.830-04:00Joanna you are such a sweetheart,the way you treat...Joanna you are such a sweetheart,the way you treat any guide everyone at bloorview is amazing. During our 4 month stay with my son Omar at bloorview every morning I saw a beautiful smiling face at reception.<br />Hats off to you <br />Rehan Siddiqui Rehan Siddiquihttps://www.blogger.com/profile/13227009566894683313noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-57900323058336608762019-05-10T11:39:03.911-04:002019-05-10T11:39:03.911-04:00Great initiative! Time is of essence for such chil...Great initiative! Time is of essence for such children and their parents. HBKR assigning dedicated resources such as family leaders to improve the overall effectiveness and efficiencies for the clients, is a huge leap in the right direction. Sknoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-1432310836124294962019-05-10T01:47:02.034-04:002019-05-10T01:47:02.034-04:00I met Kelly a long time ago. I have known Jake in...I met Kelly a long time ago. I have known Jake in clmingsand goings, but haven't seen him in a long time. I live this connection. I'm so happy he got this opportunity. Jake, be proud of yourself.marjsimpsonhttps://www.blogger.com/profile/00349598205586181148noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-7548910828647391692019-05-01T00:34:57.761-04:002019-05-01T00:34:57.761-04:00Solid work, Jess! Solid work, Jess! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-45204003553406478082019-04-30T20:18:02.588-04:002019-04-30T20:18:02.588-04:00Jess, you are such a positive role model. You cont...Jess, you are such a positive role model. You continue to impress me with your accomplishments.Anonymoushttps://www.blogger.com/profile/10021357799593970913noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-25919946254608338572019-04-25T20:02:28.593-04:002019-04-25T20:02:28.593-04:00I'm more outgoing since my TBI. I speak my min...I'm more outgoing since my TBI. I speak my mind. I'm not sure if that's a good thing at times though. But, I do know when not to say certain things.Anonymoushttps://www.blogger.com/profile/05004447920982384957noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-30117763744044852872019-04-25T10:09:38.291-04:002019-04-25T10:09:38.291-04:00What a great idea!!!What a great idea!!!Melissa Nnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-5103250892349739482019-04-22T18:22:04.124-04:002019-04-22T18:22:04.124-04:00Bravo Omar, you made it possible and you have set ...Bravo Omar, you made it possible and you have set an example for others who are struggling.Anonymoushttps://www.blogger.com/profile/08761630006960715338noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-72585673957272995452019-04-20T01:55:08.186-04:002019-04-20T01:55:08.186-04:00Hi Omar,
would love to see your YouTube channel.Hi Omar,<br /><br />would love to see your YouTube channel.Adelaide Duponthttps://www.blogger.com/profile/01490123934889071074noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-34688943337857024132019-04-20T01:45:43.122-04:002019-04-20T01:45:43.122-04:00Thanks a lot for sharing.Thanks a lot for sharing.JACKhttps://dentalchat.com/noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-57688937118834917042019-04-16T15:40:32.911-04:002019-04-16T15:40:32.911-04:00Well Done my friend Fiaz! When I read this article...Well Done my friend Fiaz! When I read this article it is true, Holland Bloorview is the best place to do rehab youth and children. Every time I visit it feels like a second home to me. This article is well done and the service is excellent.I agree with you! Osmond Shennoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-31292677574539095882019-04-12T15:37:20.492-04:002019-04-12T15:37:20.492-04:00This was an amazing interview of a really dedicate...This was an amazing interview of a really dedicated person. Thank you for all you do Nick Reed!Lori B.noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-63941236251834727522019-04-12T12:23:31.189-04:002019-04-12T12:23:31.189-04:00I so appreciate the truth and vulnerability in thi...I so appreciate the truth and vulnerability in this post. The constant need to advocate and re-imagine the world so our kids can have a place of belonging and growth can be exhausting and frustrating. And unless you're somehow in it, you just don't understand the magnitude of it. And yet, we as the parents, advocates, caregivers, wannabe world changers have to be able to step up - no matter what - and keep moving forward. So that's what we do.Sandyhttps://www.blogger.com/profile/11314727524939445909noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-80556764499536025662019-03-27T10:41:12.657-04:002019-03-27T10:41:12.657-04:00Fabulous update!!! After local protests, Weyburn r...Fabulous update!!! After local protests, Weyburn reversed its decision, so the group home will be included. https://www.cbc.ca/news/canada/saskatchewan/weyburn-council-intellectual-disabilities-group-home-vote-1.5070099?fbclid=IwAR1AKFbupmF9GjnKsvV7PNzNFGxrGrp1u2CBjOB6gu1mIG0_IsENRf3lEQU<br />BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-4762731822187917272019-03-26T01:46:42.321-04:002019-03-26T01:46:42.321-04:00
I am very grateful you did share your knowledge h...<br />I am very grateful you did share your knowledge here. It is an excellent postDavid Millarhttps://www.clippingsolutions.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-10049952733442859742019-03-19T20:21:00.734-04:002019-03-19T20:21:00.734-04:00Val was not my social work when I was on BIRT but ...Val was not my social work when I was on BIRT but she ran a parent potluck event a couple of times and during those events we had some really great conversations about our profession (I am also a social worker). She genuinely cares about her clients and her profession and it shows. Anonymoushttps://www.blogger.com/profile/07748947903573622630noreply@blogger.com