tag:blogger.com,1999:blog-447392662850613354.post8975825959397812535..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: 'I'm still on the bus'BLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-447392662850613354.post-13723266818385383632010-04-18T19:15:47.807-04:002010-04-18T19:15:47.807-04:00Keep on writing Louise. I love reading your stuff!...Keep on writing Louise. I love reading your stuff!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-28139989730579394332010-03-15T16:33:13.429-04:002010-03-15T16:33:13.429-04:00What a much needed and insightful interview.
The...What a much needed and insightful interview. <br /><br />The comment, "The devil is in the details. Inclusion is not just shifting physical space. It's a technical project and a moral and ethical project. The old special-ed model says the problem lies in the kid. An inclusion model looks at what happens around the kid. If we want inclusion, we have to shift the area of intervention from the kid to the environment—to the peers and the teacher and what happens around the kid. Unfortunately, folks continue to do inclusion in a treatment model. That's detrimental to everyone, because we know inclusion doesn't work without environmental change. Then when it doesn't work, they blame inclusion." hits me hard because I struggle with this very thing right now at Gabe's school. <br /><br />Already, I'm hearing comments from his school that he is "stubborn" and "non-compliant", although hand in hand with these comments is the idea of strategizing to "fix him". <br /><br />My son doesn't need to be fixed to be included. That is what is SO hard about this. <br /><br />As a parent, I am humbled and grateful for a school system that embraces Gabriel, but at the same time I fear that the box of inclusion is too small for him to be anything but un-able; like self-fulfilling prophecy type thinking.<br /><br />Truly, it is the people in our lives how actually see our son as able that have made a big difference in his life.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-2368446019992099852010-03-10T15:02:09.297-05:002010-03-10T15:02:09.297-05:00I just came to your blog through Elizabeth and Sop...I just came to your blog through Elizabeth and Sophie's blog. Thank you. As an adult who grew up with a disability (I had polio as a child--one of the last to get it in the U.S.--and grew up with an affected left leg) I know a handicap can be--well, a handicap. But, given the chance, every child has something to offer. I've seen people with very severe handicaps turn those around them into better people. It really gets to me when anyone, most especially a child, is dismissed or talked about rather than too. I'll be back to read more.<br /><br />Best,<br />BonnieFrom the Kitchenhttps://www.blogger.com/profile/00789641912016566894noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-28666433456854307172010-03-10T09:36:03.962-05:002010-03-10T09:36:03.962-05:00Louise this is wonderful. Thank you!
LisaLouise this is wonderful. Thank you!<br />LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-15863701369715747632010-03-10T01:34:20.543-05:002010-03-10T01:34:20.543-05:00Thank you for a most interesting interview with a ...Thank you for a most interesting interview with a fascinating person. I can't wait to get The Short Bus and would love to meet Mr. Mooney since we both live in southern California!Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-28290536580234236252010-03-10T00:16:15.353-05:002010-03-10T00:16:15.353-05:00Brilliant!!Brilliant!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-19613637076101298552010-03-09T22:02:40.637-05:002010-03-09T22:02:40.637-05:00Thanks, Louise for this. 'The Short Bus' ...Thanks, Louise for this. 'The Short Bus' is one of my favourite books. You did a fantastic job on the interview...Jonathan's comments were insightful and spot on.suehttp://www.suerobins.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-47846482474280686812010-03-09T19:07:47.953-05:002010-03-09T19:07:47.953-05:00As an adoptee I can relate to Jonathon's story...As an adoptee I can relate to Jonathon's story about people thinking he had overcome his learning disability. I found my birth parents and thought I had overcome being adopted but sadly was still 'adopted' and would forever be an adoptee.<br /> <br />And about sitting between two worlds (the story of those with LD and those in wheelchairs) like Jonathon I have thought and talked about that so frequently. For me its about the able and disabled worlds ...and never being a true member of either one but getting to dabble in each when I am invited. Max was not disabled enough at times and then at other times too disabled.<br /> <br />When he spoke of the Ashley who is deaf/blind ...I gasped as I remembered my hurt moment when I fell apart in Indigo - true hurt when a man told his children to 'get away from Max - he's sick'. And yes it hurt more than Max's medical interventions. I sought out Joanna the social worker at Bloorview and she gave me some great tools for my toolbox so that I would be bettered prepared the next time I had an 'Indigo' experience.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-9205680230281965302010-03-09T16:59:55.611-05:002010-03-09T16:59:55.611-05:00Powerful. One of Jonathan's comments jumps out...Powerful. One of Jonathan's comments jumps out at me. He says that many kids don't develop their interests and talents because their time is consumed by interventions and treatments. So true.<br /><br />For the first time in my community, there is a choir for kids with special needs. My 17-year-old daughter has joined--and boy, can she sing!jack kayhttps://www.blogger.com/profile/01175812573390194669noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-58919420309741972902010-03-09T16:33:45.294-05:002010-03-09T16:33:45.294-05:00Wow such inspirationWow such inspirationsouldosehttp://www.souldose.comnoreply@blogger.com