tag:blogger.com,1999:blog-447392662850613354.post7779634921913145470..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: A therapist finds herself in parent shoesBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-447392662850613354.post-85174372400903171032014-02-24T16:49:38.014-05:002014-02-24T16:49:38.014-05:00Thanks for this eye-opening piece. I live in the ...Thanks for this eye-opening piece. I live in the northern US and had one child on my caseload with Sturge-Weber. They have since moved away but I wonder what happened. I think of them often. Liz the PTnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-63023872894846521322014-02-19T11:13:02.365-05:002014-02-19T11:13:02.365-05:00Thank you, Lizna. I have had similar experiences w...Thank you, Lizna. I have had similar experiences with services regarding my own son, Lucas, and his treatments. I have said so many times all the things you say - what do others do who aren't as aware as I am or who have other barriers I don't have? It's great to feel I'm not alone, but horrible to know that other people have also had these bad experiences which seem inexcusable this day in age with all the supports and technology we have in place. Maybe we can change awareness. I hope so. Thank you for sharing your story and I'm so happy to hear that your son is doing so well thanks to your initiative.Lucas' Momnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-35534229370345936022014-02-18T19:59:26.751-05:002014-02-18T19:59:26.751-05:00Great article! Lucas is certainly a lucky boy in ...Great article! Lucas is certainly a lucky boy in that he has a great team of advocates and supports surrounding him. Supports for the family and the parents are all too often the piece that is missing. Patients can "fall through the cracks" as can families in that so many of these supports have strict income or other rigid criterea. Other families are all too often the best resource when the information should really be coming from the health care providers themselves.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-36209072304141345512014-02-18T17:51:01.930-05:002014-02-18T17:51:01.930-05:00Would love to see this shared with other rehab pro...Would love to see this shared with other rehab professionals! I think Lizna would have the credibility as an OT that us 'regular' moms would not.<br /><br />Love the 'listening' lesson - that was brilliant. AND the recognition that many rehabs are not funded and parents have to pay privately (that's the case in Alberta too). AND the extra inequity for families who struggle with advocating - that's an important point. AND the value of peer support. Yes, yes and yes! Sue Robinshttp://www.suerobins.comnoreply@blogger.com