tag:blogger.com,1999:blog-447392662850613354.post715569633774380573..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Make work? Families still face too much of itBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-447392662850613354.post-44896883425604930742016-09-27T20:13:50.440-04:002016-09-27T20:13:50.440-04:00I have SO many stories similar to this - as I know...I have SO many stories similar to this - as I know others do too. <br /><br />On the hearing loss front - my son had a hearing test by an audiologist at a children's hospital in Alberta two weeks before we moved to British Columbia. The school district here 'would not accept' our very fresh audiologist report because it was from another province. Aaron had to go to through the process of being on a wait list for a hearing test in BC, which surprise surprise showed the exact same results. This took six months- all the while Aaron could NOT HEAR his teacher in the classroom because he had no FM system. <br /><br />Never mind the forms we have to fill out over and over again AND the number of times I need to go to the pediatrician so she could sign a form 'proving' he still has Down syndrome. <br /><br />These demands for proving the same thing over and over have many effects:<br />1. family fatigue and frustration<br />2. delay of service for our kids<br />3. waste, waste, waste of resources and time -both for the system and for families<br /><br />Why would I 'fake' my kid's disability? I mean, what percentage of people really do that? Do we need to design an entire system around that 0.00001% risk? sue robinshttp://www.suerobins.comnoreply@blogger.com