tag:blogger.com,1999:blog-447392662850613354.post7083541259368285053..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Parent despair is like a breaking dam: André MarinBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-447392662850613354.post-88976523096674690292013-05-03T18:49:07.611-04:002013-05-03T18:49:07.611-04:00There is still time for more families and those wh...There is still time for more families and those who support families Like Bloorview, Geneva Centre, Community Living, Surrey Place, etc. to contact the Ontario Ombudsman Office as it is not too late. The more people who do this the more likely that the government will pay attention. The agency folks need to become involved even though they get government funding. Shame on the McGuinty-Wynne government for pretending to be doing something. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-1355242851407705532013-05-03T16:00:47.014-04:002013-05-03T16:00:47.014-04:00I found it meaningful that on the way home from he...I found it meaningful that on the way home from hearing Silken at Holland Bloorview, CBC was talking philosophy- namely about the moral obligation of us to help others in need. How this all fits together for quite a week! So much running through my head. Great inspiration from Silken. Thank you, Louise.Lucas' Momnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-36144074662904873532013-05-03T14:17:12.742-04:002013-05-03T14:17:12.742-04:00Hi -- The ODSP was left intact. They had talked ab...Hi -- The ODSP was left intact. They had talked about integrating it with general welfare. Phew!BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-58428642870519915792013-05-03T12:17:36.036-04:002013-05-03T12:17:36.036-04:00I'm just shaking my head down here in the U.S....I'm just shaking my head down here in the U.S. of A., knowing that the problems are similar, if not worse. We HAVE to figure out, as a culture, how we are going to deal with these things in a civilized, appropriate way. I have to believe that it's a matter of priorities.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-62664491561501940942013-05-02T23:00:44.848-04:002013-05-02T23:00:44.848-04:00Thank you for this, Louise. I had no idea about th...Thank you for this, Louise. I had no idea about the proposed reforms to ODSP. I am watching this issue and thinking tonight about what steps I might take to help advocate... The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-91113499843074581402013-05-02T21:04:13.945-04:002013-05-02T21:04:13.945-04:00Hi
Louise, how can we find out about these speaker...Hi<br />Louise, how can we find out about these speakers? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-40661589792473896002013-05-02T17:30:50.932-04:002013-05-02T17:30:50.932-04:00As the parent of a 5 1/2 year old child with signi...As the parent of a 5 1/2 year old child with signifcant devlepmental delay compounded by medical fragility, this situation terrifies me.<br />There are wait lists for everything and very little funding available - even worse if you don't fit a specific 'label'. <br />For example, we have been on the wait list for SSAH (Special Services at Home Funding) for over 3 years. <br />The Telford situation terrifies me (and astounds me). I don't know what or future holds, or how long our child will be with us, but I am resigned that I will be doing it alone with little to no assistance.Julienoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-14667403021258614582013-05-02T16:24:10.355-04:002013-05-02T16:24:10.355-04:00This issue doesn't just pertain to adult child...This issue doesn't just pertain to adult children with developmental disability but to adult children with severe physical disability as well. Who helps us parents with our child that is completely 100% physically dependant on another person for daily living? I have to work to survive ... How can I be there to look after him AND be at my job at the same time? And what about our other children? We can't look after them when all of our time is spent looking after our disabled child. There are days when I just feel like giving up ...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-75520082836587551822013-05-02T13:09:08.274-04:002013-05-02T13:09:08.274-04:00I think that the Ottawa family is a sad situation ...I think that the Ottawa family is a sad situation and all too common. I'm sure they did not do this as simply a political act but rather one borne from frustration and exhaustion. I agree we need to wait and see what happens today.... and depending on the results, perhaps a few of us could drop our adult children off with Kathleen Wynne to manage for a few days....Lorinoreply@blogger.com