tag:blogger.com,1999:blog-447392662850613354.post5471514137940554372..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: A deadly disease takes a family captiveBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-447392662850613354.post-74131730288099601902015-02-23T11:26:38.557-05:002015-02-23T11:26:38.557-05:00You are so not alone. Our family lives with the s...You are so not alone. Our family lives with the same sense of unfairness, BUT we must find the "light" each day so we can move forward. I hate Loeys-Dietz Syndrome. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-37562291356220612762015-01-30T22:28:02.756-05:002015-01-30T22:28:02.756-05:00Your family is amazing! I so understand the unfair...Your family is amazing! I so understand the unfairness of having special needs & the effect of constant care & how life is turned upside down..... I have five children & my youngest son has severe cerbal palsy this journey is very challenging its downright horrific for siblings my children love Manuel (Bear) we all can relate to how unfair this rollercoaster ride is but we so love our children along the way ....Lady Angelhttps://www.blogger.com/profile/16787240603875531232noreply@blogger.com