tag:blogger.com,1999:blog-447392662850613354.post4776064906290276084..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Clinicians set tone for parent collaborationBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-447392662850613354.post-21347145147852150612010-10-19T22:34:55.888-04:002010-10-19T22:34:55.888-04:00Sounds like a great conference. As a parent of a c...Sounds like a great conference. As a parent of a child with a disability and a RN who works with children with developmental disabilities I see often how health care providors preconceived notions narrow their ability to actively listen to parents and their concerns. <br />Parents know their children best and know when to be concerned. Too often health care providors don't stop to listen to what the families concerns are as they are busy planning interventions for what they see to be the problem. <br />Stereotyping parents is the greatest wrong for health care providors as it narrows their thinking and impairs their ability to actively listen to the core message parents are trying to relay.<br />Being stereotyped as the nervous mother has led to very poor judgement in my daughter's care. My 'nervous first time pregnancy' led the OB to disregard my concerns about pre-term labour and my daughter was born at 25 weeks. My concerns about my daughter's delayed development was brushed off as the I was 'anxious preemie parent' this was when at 30 months she was not walking. That HCP providor even had the audacity to kick us out of his clinic as I obtained and second opinion regarding her physical delays. I won't even begin to discuss the fights we have had in ER's trying to get HCP's to listen and provide adequate efficient care.<br />If a parents concerns were validated early on appropropriate action could be taken and children can begin to receive the early intervention they desparately need.<br />Sorry for my rambling but is something that needs to be taught in all schools pertaining to health care. PARENTS KNOW THEIR CHILDREN BEST.BusyLizzyMomhttps://www.blogger.com/profile/09116803603107554804noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-32384812100944561812010-10-16T00:26:25.102-04:002010-10-16T00:26:25.102-04:00Such terrific advice. There's quite a movement...Such terrific advice. There's quite a movement here in the U.S. for parent/patient-centered care. I have been working for years part time as a parent advocate, helping parents to advocate for themselves and nudging the professionals to look on parents as equal partners. It's slow going, but with folks like you, it seems hopeful!Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.com