tag:blogger.com,1999:blog-447392662850613354.post4129737783383429579..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Poor health care a factor in early deathsBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-447392662850613354.post-59176467859384894002013-09-02T06:14:29.757-04:002013-09-02T06:14:29.757-04:00This is just disgusting. Government has to take so...This is just disgusting. Government has to take some actions soon to look after disables. Motivate the organisations who dedicate themselves for caring and encouraging such people. Stairliftshttp://www.whichstairliftsuk.com/noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-67519886562869894832013-08-20T00:27:39.768-04:002013-08-20T00:27:39.768-04:00This is heartbreaking to me. I often have the feel...This is heartbreaking to me. I often have the feeling I have to convince doctors to care about the physical comfort and welfare of my son with disabilities. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-14863340085854941852013-08-19T21:53:06.772-04:002013-08-19T21:53:06.772-04:00It's a foregone conclusion that those who cann...It's a foregone conclusion that those who cannot communicate their symptoms clearly, who act a certain way for a certain reason (such as the man with the ruptured appendix) are not going to get the care that those who can communicate can. <br /><br />The problem is that those with special needs, disabilities who cannot advocate for themselves effectively, also do not have someone who cares for them deeply and is very much invested in their care and health. Children, babies are often helpless to get medical care, and cannot verbalize their symptoms, and are left to the mercies and abilities of their parents. But most parents are fiercely protective of their children and will fight and advocate. When such people are missing in others' lives, the consequence is that the health care does not happen. <br /><br />It's not just the disabled but anyone without a devoted advocate who cannot effectively advocate on their own who don't get the health care or any kind of care at the levels that those who have someone able and cares or can effectively care for themselves will get. Catherinehttps://www.blogger.com/profile/11149885637140617891noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-57583107347930859032013-08-19T20:47:59.065-04:002013-08-19T20:47:59.065-04:00Whoops, it's Anne, not Ann. I have Anns, Annie...Whoops, it's Anne, not Ann. I have Anns, Annies, and Annes among my friends and they don't like being confused. Anne Fadiman.Ahttps://www.blogger.com/profile/06318174928862120631noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-27678078434484664182013-08-19T19:10:01.788-04:002013-08-19T19:10:01.788-04:00This is distressing, and reminds me in a way of An...This is distressing, and reminds me in a way of Ann Fadiman's "The Spirit Catches You and You Fall Down": the cultural disconnect, language abilities or inabilities, etc.Ahttps://www.blogger.com/profile/06318174928862120631noreply@blogger.com