tag:blogger.com,1999:blog-447392662850613354.post4017846327044551130..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: When there are no medical answers BLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-447392662850613354.post-43947851337856232732016-09-09T14:21:54.010-04:002016-09-09T14:21:54.010-04:00I'll never remember what a mom said to me as w...I'll never remember what a mom said to me as we stood in a hospital and the doctors ignored her. <br /><br />"They can tell me all the things their textbooks tell them...I know my kid. I don't have to listen or believe them. Medicine isn't the all and end all. I am still going to suction him, rub his tummy, give him warm baths and sooth him, even if they say none of that will help. He's not going to get better, so I might as well start listening to my heart for solutions."<br /><br />This was after being sent home once, going back and refusing to leave, being seen after fifteen hours. By day two they figured out he had twisted gut syndrome, which is very painful and sometimes fatal. They operated right away. Trust your gut. Don't let doctors make you feel any less. Man made medicine doesn't always help. Trust yourself as a mom and go back to what your heart tells you is right for Ben. You don't need a doctor to tell you that.marjsimpsonhttps://www.blogger.com/profile/00349598205586181148noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-41500963981530770832016-08-14T12:13:47.410-04:002016-08-14T12:13:47.410-04:00Louise, I'm so sorry that this has presented i...Louise, I'm so sorry that this has presented itself so much later in life. Keep asking questions, keep researching, keep managing the pain- when there is nothing that can be done by doctors, this is what will get you through- knowing you, his mama, did all she could do. Anonymoushttps://www.blogger.com/profile/16848003320347409182noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-18708803476037346902016-08-13T18:57:29.755-04:002016-08-13T18:57:29.755-04:00Louise, I have done a great deal of research on sc...Louise, I have done a great deal of research on scoliosis. Feel free to contact me if you want any information. Furthermore, my 22 year old Sophie has a 90 degree curve and has never had surgery. Now, she is not mobile like your son, but she is doing well in spite of it. Let me know if you want to chat a bit. <br />Claire Clairehttps://www.blogger.com/profile/13070297384173508509noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-27360580529594490622016-08-13T18:02:01.019-04:002016-08-13T18:02:01.019-04:00Thank you for this post. You explore such difficu...Thank you for this post. You explore such difficult issues that few address with deep honesty and insight. Anonymousnoreply@blogger.com