tag:blogger.com,1999:blog-447392662850613354.post1854973127718055228..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Raising a child who wasn't supposed to surviveBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-447392662850613354.post-5119065233455899492012-02-06T19:06:04.013-05:002012-02-06T19:06:04.013-05:00I admire your courage. My daughter is a very spec...I admire your courage. My daughter is a very special needs child with multiple health issues, and then some, and she is our world. She has tought both, my husband and I, patience and the real meaning of love. She has passed over a few times in her short life and without saying, we are so blessed that our miracle of love is still with us. Never give up!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-86157852157714653282012-01-15T21:30:52.263-05:002012-01-15T21:30:52.263-05:00To: Anonymous:
Just to clarify, Amanda's condi...To: Anonymous:<br />Just to clarify, Amanda's condition was in no way caused by the morphine at the hospital. Trisomy 18 is a genetic condition, in our case, hers is Full Trisomy so it was not a inherited trait, just a unfortunate error during cell division. As my wife mentioned, she was administered morphine because she was not expected to live as what the medical fields statistics say. So they were trying to comfort her until she would pass away.<br /><br />Eric, Amanda's dad.Eric and Esmirnahttp://dominicancreations.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-17173299169290741452012-01-14T11:55:09.217-05:002012-01-14T11:55:09.217-05:00Do I understand correctly that a newborn who was n...Do I understand correctly that a newborn who was not dying or suffering was given morphine and sent home with it, without the parents' request for such care? <br /><br />I wonder if her predicted disabilities were related to this and what the implications are.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-54734050498040953822012-01-13T23:59:29.181-05:002012-01-13T23:59:29.181-05:00Great interview Esmirna and Amanda seem lovely! Oh...Great interview Esmirna and Amanda seem lovely! Oh and I totally agree with you Amanda wanted your attention.Sherry Chttps://www.blogger.com/profile/17320106277509509294noreply@blogger.com