tag:blogger.com,1999:blog-447392662850613354.post823556526036339426..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Is life with disability half as good as life without?BLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-447392662850613354.post-82364609540171556272009-08-19T12:47:11.923-04:002009-08-19T12:47:11.923-04:00Dear MBrown:
Thank you for your eloquent response...Dear MBrown:<br /><br />Thank you for your eloquent response! Hope we hear more about your teenager.<br /><br />Thanks again, LouiseBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-41611705208413863762009-08-19T12:44:45.827-04:002009-08-19T12:44:45.827-04:00Hi Sarah: Thanks so much for writing. I agree with...Hi Sarah: Thanks so much for writing. I agree with this comment of yours: <br /><br />"Kids with disabilities that aren't going to be able to grow into succesful adults with high paying jobs aren't valued the same as kids or adults that can. My son will always need care, however his worth is in other areas."<br /><br />Our children's worth and what they contribute can't be measured in our culture's narrow way of defining success.<br /><br />Thank you for writing about your son's priceless attitude and the impact it has on others. We need to speak more about how gifted our children are, each in their own way.<br /><br />I hope to hear more about your son! Thanks for writing, LouiseBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-5216984182364644922009-08-19T12:23:50.447-04:002009-08-19T12:23:50.447-04:00Hi Clare: I am playing catch up with comments. Tha...Hi Clare: I am playing catch up with comments. Thank you so much for posting! Stumbling on Happiness is an interesting read. I'm familiar with Life As We Know It (and have read Bérubé's pieces in magazines/papers), but I haven't actually read the book. I plan to. And I'm very excited to hear about the sequel written with his son. Father and son might make great guest bloggers for the BLOOM blog at some point.<br /><br />Thanks again for writing and hope to hear from you again, LouiseBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-979452521380277502009-07-25T11:50:32.556-04:002009-07-25T11:50:32.556-04:00I absoloutely agree with your thoughts on this and...I absoloutely agree with your thoughts on this and health care rationing is definately a slippery slope. Unfortunately I see this type of scenario even in the school system. <br /><br />Funding and services for early intervention is far more generous than if they still require assistance once they have exceeded those crucial early years. It almost seems as though the thought process for this is these kids (mine is mentally handicapped so that is the disability I am talking about) aren't going to be able to 'get better' or what they have can't be 'fixed' so all of a sudden funding drops and then so do services. Kids with disabilities that aren't going to be able to grow into succesful adults with high paying jobs aren't valued the same as kids or adults that can. My son will always need care, however his worth is in other areas. He has unconditional love for everyone and says 'Hi' and gives a big smile to everyone he comes across. There are probably countless people out there that their day was made better by that simple gesture. How can anyone put a price on that??Sarahhttp://ourlittlegongshow.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-80282307345786750032009-07-24T21:46:46.932-04:002009-07-24T21:46:46.932-04:00I think Mr Singer is looking for a job in the medi...I think Mr Singer is looking for a job in the medical insurance field in the US since he is easily able to assign a dollar figure to human life. Without a clear-cut definition of "quality of life", his argument is moot. Furthermore quality of life is subjective and therefore would be next to impossible to quantify accurately.<br />As an individual with health issues and as a parent to a 15 year old with multiple disabilities, I resent Mr Singer's able-bodied arrogance. He can choose for himself if he would live or die in any situation but he doesn't have the right to decide the value of my life or the value of my family's life.MBrownnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-61179214423561002009-07-24T15:31:43.887-04:002009-07-24T15:31:43.887-04:00Fantastic post. I too cringe every time I see Sing...Fantastic post. I too cringe every time I see Singer's name on a disability-related article. And I work in academia so I'm used to dispassionate arguments. I'm just not convinced that's where he's coming from. I look forward to reading Stumbling on Happiness. The book that opened my eyes about 10 years ago to bigger issues on disability was Life As We Know It by Michael Bérubé, written about life with his then-5-year-old son with Down syndrome. They are now working on a sequel together.Clarehttps://www.blogger.com/profile/16131472421353422135noreply@blogger.com