tag:blogger.com,1999:blog-447392662850613354.post7963372593333711100..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Is big better?BLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-447392662850613354.post-48969707717842599102010-07-19T12:22:24.432-04:002010-07-19T12:22:24.432-04:00Thanks for a wonderful post, Louise.
Ugh. Size ca...Thanks for a wonderful post, Louise.<br /><br />Ugh. Size can be such a trigger for me, too. People are constantly asking me if my boys are twins, even though they are three years apart and look nothing alike! (You can check out http://griefinterrupted.com/2010/06/14/in-the-caregivers-shadow/ for my recent post on this topic.)<br /><br />And just last night with dinner guests we had a "you're such a big boy" moment that made me cringe just a little. (One guest said that to my short, 7.5 y.o. 40-pounder, son and then, in response to the tall, 4.5. y.o. 45-pounder's plea for attention said, "And you're a REALLY big boy!") <br /><br />I think it can be especially tough when the younger one(s) has (have) skills that exceed the younger one's. My older one, the one with an unidentified genetic syndrome, is still kind of oblivious to it, but my younger one is catching on fast. I know I'll have to be vigilant to help my older son keep up his confidence in both his size and cognitive development.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-86794502769916079402010-07-09T16:32:23.556-04:002010-07-09T16:32:23.556-04:00Oh, wow. This post was just so moving. Thank you f...Oh, wow. This post was just so moving. Thank you for your honesty. You are such a good mom.Angelahttps://www.blogger.com/profile/11387011004798871747noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-8017624503737114752010-07-07T23:43:47.164-04:002010-07-07T23:43:47.164-04:00Thanks for your posts Lianna and anonymous!
It...Thanks for your posts Lianna and anonymous!<br /><br />It's interesting how people make assumptions based on children's size -- but I guess it's all part of the snap judgments that are made everyday based on different aspects of physical appearance. <br /><br />I would love to hear your impressions of Tutu's book Lianna (which I haven't read).<br /><br />We just got the Access 2 Entertainment card -- thanks for making our readers aware of it!BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-26803943585384053052010-07-07T23:38:47.669-04:002010-07-07T23:38:47.669-04:00Welcome Azaera -- I'm so glad you posted and i...Welcome Azaera -- I'm so glad you posted and it's great to hear about Skyler. Have you been in touch with the Magic Foundation in the US -- they are an association for families of kids with growth issues. Many of their members have kids who receive growth hormone injections. We also had a trial of these with Ben many years ago -- but they didn't work for him (but he wasn't technically growth-hormone deficient).<br /><br />There are many great sayings about the beauty of being small: Good things come in small packages, small is beautiful. When Skyler is interested in his size, I'm sure you'll think of an age-appropriate, simple way to explain why from a medical perspective. I always made a point of emphasizing the good things about being small and how some people are big and some small, and everyone is different and that's okay.<br /><br />I hope we get to hear more about Skyler!BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-55682771051844736652010-07-07T22:28:46.457-04:002010-07-07T22:28:46.457-04:00I've been lurking here for a while, but I don&...I've been lurking here for a while, but I don't usually post. My son has hypopituitarism along with a visual impairment (he's legally blind) and he will most likely need human growth hormone to grow. So what you have written about today really touched me. Skyler is too young to ask why he is so small (he is underweight and tiny, but he was born 2 months early as well) and I often wonder what I will tell him when he starts to ask those questions.Azaerahttps://www.blogger.com/profile/00778026696324592463noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-75852305426746175352010-07-05T21:59:10.842-04:002010-07-05T21:59:10.842-04:00This may be of interest to some of you. The Acces...This may be of interest to some of you. The Access 2 Entertainment card entitles the support worker of a person with a disability to free admission to many movie theatres across Canada, as well as many attractions in Ontario and some other provinces. More details are below. I heard about it through a friend who has the card. <br /><br />http://www.access2.ca/faq.html<br /><br />http://access2.ca/venuesmenu.htmlAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-9716526006730448192010-07-05T15:50:16.008-04:002010-07-05T15:50:16.008-04:00Having a child with Down syndrome, Terry and I oft...Having a child with Down syndrome, Terry and I often hear people (in the know about Ds) exclaim over Gabriel's height. It's an interesting thing because sometimes it feels as if that mere observation separates him from the whole of the Ds community, and perpetuates the blanket idea that children with Ds have short stature.<br /><br />And yet, his height in the "typical world", where he is right on par with his typical peers, brings on expectations like "act your age". It's a difficult thing because his height is a false facade and the presumptions about Gabriel can make things tough for him, and for us.<br /><br />I hope that as Ben matures, his longing for "tallness" will grow through his heart and mind and he'll see that being a man in itself is far more beautiful than that of society's idea of the "big man". :)<br /><br />I plan on reading Tutu's book "No Future Without Forgiveness" because that quote is SO inspiring. I think that has been the most sage wisdom I've read in a long, long time.Anonymousnoreply@blogger.com