tag:blogger.com,1999:blog-447392662850613354.post7385223315297192808..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Beauty: It's ours to chooseBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-447392662850613354.post-28848730210162135132013-02-01T16:22:51.414-05:002013-02-01T16:22:51.414-05:00Two words: simply beautifulTwo words: simply beautifulAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-13427463407451479452010-10-06T11:10:43.676-04:002010-10-06T11:10:43.676-04:00Louise! Your're son is adorable and you're...Louise! Your're son is adorable and you're brave.<br /><br />People who have beautiful hearts see only the beauty in others. All those who commented above me have beautiful hearts.<br /><br />I'm a mother of a fifteen year old daughter, who is severly disable. She is my joy and pride.<br /><br />AnnaAnnanoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-37907018182002419872010-10-05T17:57:37.637-04:002010-10-05T17:57:37.637-04:00your story is beautiful and moving. As a mom whose...your story is beautiful and moving. As a mom whose been there I can relate. Thank you for sharing this beautiful picture.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-74001025086256253742010-10-05T17:31:59.157-04:002010-10-05T17:31:59.157-04:00I can relate completely to this post. My middle so...I can relate completely to this post. My middle son was born with "dysmorphic" features, but my husband and I take offence to the word. He is a beautiful boy and the thought that he is anything but a beautiful child is unacceptable to us. I am not in denial that he looks different than other children his age but he still has the same thoughts, feelings, wants and needs as all of the children around him.<br />Genetics took pictures of him also to help "diagnose" him and I can relate to how you felt. Thank you for writing this.Colettenoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-61847125797150013062010-10-05T13:47:28.799-04:002010-10-05T13:47:28.799-04:00I must be blind, I still can't see anything bu...I must be blind, I still can't see anything but a beautiful little boy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-46742887195168320362010-09-25T19:28:54.694-04:002010-09-25T19:28:54.694-04:00Of course Ben is beautiful! Aww, I hate that peopl...Of course Ben is beautiful! Aww, I hate that people make us worry about those kinds of things. I admit sometimes I have moments of "Oh that picture would be gorgeous if one of his eyes wasn't crossed so far in.." but that IS my son, those are his beautiful eyes, and there's nothing but beauty and love in them. When I think about it I don't care how the world sees him. He is always going to be gorgeous to me.Azaerahttps://www.blogger.com/profile/00778026696324592463noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-52826286183996070382010-09-25T01:28:36.536-04:002010-09-25T01:28:36.536-04:00an old soul.
an old soul is also what I see in ...an old soul. <br /><br />an old soul is also what I see in the NICU pictures of my son. wise beyond their years.Susannoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-62632078035302376282010-09-24T16:15:45.706-04:002010-09-24T16:15:45.706-04:00Thanks so much everyone! :) !!
Bridget's Lisa...Thanks so much everyone! :) !!<br /><br />Bridget's Lisa -- I found many of the Motherlode comments shocking. I love what you wrote in your last paragraph:<br /><br />"Once you have seen the light and promise in a person others consider imperfect, you begin to see that light everywhere. You begin to understand that words like BEAUTIFUL and BURDEN are very subjective. You become enlightened to the human condition an open to all it entails. You become compassionate. You become HUMANE."<br /><br />Imperfection is part of the human condition -- it is part of all of us. That's why we are able to feel empathy and compassion. Light and dark, strength and weakness, joy and pain. They touch every life, regardless of disability.BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-28469011092353669852010-09-24T10:42:32.380-04:002010-09-24T10:42:32.380-04:00Ben IS simply beautiful.
How could the paeditric...Ben IS simply beautiful. <br /><br />How could the paeditrician be so incredibly insensitive...and the photo taking was very demeaning. All too often people are unable to see beyond anything that doesn't fit in their idea of "normal". <br /><br />Your love for Ben is very precious and beautiful too. Thanks for sharing.humbledmumhttps://www.blogger.com/profile/11499036764019215921noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-11205109457893431702010-09-24T10:20:08.856-04:002010-09-24T10:20:08.856-04:00This is beautiful, Louise! The baby photo is preci...This is beautiful, Louise! The baby photo is precious! <br /><br />Our Bridget has a rare dual diagnosis (Down syndrome coupled with another "syndrome" with visible physical attributes) which the genetics folks were very intrigued by...and which they wanted to photograph and "present at their next symposium". My beautiful little girl sat and smiled as they photographed her legs only. I was torn between the educational value of the situation and the fact that it just felt so wrong. "Different" does not equal "odd" in the eyes of those who love someone with a particular diagnosis. <br /><br />"What I saw was my beautiful, lovable boy, his four-day old eyes gazing right at the camera, his chubby arms, his round, full face. His right ear was cupped, yes – and I recognized the other anomalies – but it wasn’t scary. I saw the spirit and light in his eyes and it drilled a hole of tenderness in my heart, like it had so many times before.<br /><br />Beauty, I believe, is something we choose to see."<br /><br />The above quote is a perfect response to some of the comments following the articles in the NY Times recently about testing for Down syndrome. I wonder if the many people who believe that disability is scary, unwanted and inconvenient (and has no place in our world) have ever loved someone that much of the world rejects. <br /><br />Once you have seen the light and promise in a person others consider imperfect, you begin to see that light everywhere. You begin to understand that words like BEAUTIFUL and BURDEN are very subjective. You become enlightened to the human condition an open to all it entails. You become compassionate. You become HUMANE.Lisahttps://www.blogger.com/profile/17347490959410472081noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-25347602459841879892010-09-24T03:15:44.367-04:002010-09-24T03:15:44.367-04:00Honestly, if I hadn't scrolled down and read t...Honestly, if I hadn't scrolled down and read that beautiful post, I would have thought, "what a wise little soul." His eyes are so penetrating -- my god. I remember when a doctor held my Sophie up in front of his posse of residents and students. He actually rotated her around in a circle like some kind of specimen. I can't forget that.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-50833646577801059742010-09-24T01:10:13.775-04:002010-09-24T01:10:13.775-04:00He's beautiful! And this is a beautiful post. ...He's beautiful! And this is a beautiful post. It is truly awful to have your newborn scrutinized for difference, for something wrong, just as you are starting to bond. I love looking at old pictures of Oscar, now that I really know and love him, because, as you say, his spirit and light shine through in ways I don't think I could appreciate then when I was in such a state of shock and fear.Maryhttps://www.blogger.com/profile/11399324383367077919noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-29612823363093287962010-09-24T00:17:11.824-04:002010-09-24T00:17:11.824-04:00A beautiful baby boy, truly.
I wonder if doctors...A beautiful baby boy, truly.<br /> <br />I wonder if doctors have that joy of seeing a newborn beaten out of them because of their training to identify possible problems? And for a paediatrician to comment in such cold terms one hour after Ben was born is appalling.emmahttps://www.blogger.com/profile/04195918097785592926noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-90252978365829170182010-09-24T00:10:09.649-04:002010-09-24T00:10:09.649-04:00If there was a "like" button for this po...If there was a "like" button for this post, I would click on it. And if there was a "like" button on the comments of others, I would have "like"ed mooneyequalsmc2's comment as well. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-53434679462109892512010-09-23T20:45:12.651-04:002010-09-23T20:45:12.651-04:00The love you have is conveyed straight from your h...The love you have is conveyed straight from your heart, to your fingers, to my screen and I absorb them all. Thank you so much for sharing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-22290574160107347022010-09-23T19:18:50.364-04:002010-09-23T19:18:50.364-04:00He looks adorable Louise!
It makes me crazy they ...He looks adorable Louise!<br /><br />It makes me crazy they do this to new moms. As if that could not have waited a few weeks.<br />LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-47261349122351082272010-09-23T17:47:10.830-04:002010-09-23T17:47:10.830-04:00He looks just precious.He looks just precious.Looking Uphttps://www.blogger.com/profile/00622397350942965771noreply@blogger.com