tag:blogger.com,1999:blog-447392662850613354.post6022054859290457767..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Are you a special-needs parent? Dream, fail, do it again!BLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-447392662850613354.post-73034997495526912632015-08-20T14:58:36.194-04:002015-08-20T14:58:36.194-04:00Beautiful! And so so true - June is so wise.. and...Beautiful! And so so true - June is so wise.. and kind.. and wonderful.The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-21368453692501438792015-08-17T21:53:06.971-04:002015-08-17T21:53:06.971-04:00I'll never forget calling BLOORVIEW in the dar...I'll never forget calling BLOORVIEW in the dark early days and talking to June.<br />I was so desperate for help and she encouraged me to come out to some parent meetings which just felt overwhelmingly Impossible at the time. <br />I guess she was right that I'd figure it out. nice to see these stories. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-24217751756576505172015-08-13T10:56:06.548-04:002015-08-13T10:56:06.548-04:00I am posting a comment from my dear cousin Jennife...I am posting a comment from my dear cousin Jennifer, because it didn't come through. xo<br /><br />Oh Louise, I'm crying with you. What a lovely woman June is and what an open, honest, well-written post from you Louise. Your title "Are you a special-needs parent? Dream, fail, do it again!" resonates strongly with me, especially at the moment...We've been through so much with our first child, born 12 year ago with VACTERL Association, and now our second child (always the strong, healthy one) who is 10 years old has just been diagnosed with Juvenile Diabetes. It's a whole other world of medical needs and emotional rollercoasters so I feel like a special-needs parent with dreams and disappointments x 2! The children have reversed sides on the sibling-talk fence! We, as parents, given our experiences in the medical and educational systems, are both stronger and weaker all at the same time. I have cried a lot. I feel very broken, but brokenly, I carry on. Thanks for all the support you provide to help parents carry on. Love, JenniferBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-82409729666444630672015-08-11T22:01:22.616-04:002015-08-11T22:01:22.616-04:00Oh June! I remember so many things about you and ...Oh June! I remember so many things about you and your wonderful family. I remember Family Advisory meetings where I talked a little bit too much but was always welcomed, Sibling Days where I met a best friend in Elyse, who I will be forever bonded with, sitting on a panel of siblings where everyone was so sad about their sibling and you said "we wanted a sibling, who, knew this was just, life", your husband always forgetting my name, and many many more. June my mom and I appreciate you in more ways than you know and are glad to know you in and outside of Bloorview. <br /><br />The dreams. Thank goodness for those. All the things you see and know through disability can only be understood if you live it. The thing I worried about most as a sibling was Stephen dying. It wasn't about the future, or who would be responsible or could I take care of him? When Dee died, I worried even more. Then Stephen did die and the world changed, shifted, evolved. It also gave me a new life, a life of seeing others for and dreaming in a different way.<br /><br />Bloorview will be sad to see you go. I know your dreaming means you have ideas for new adventures to come. That is the chapter I want to hear about. Love you lots June!marjsimpsonhttps://www.blogger.com/profile/00349598205586181148noreply@blogger.com