tag:blogger.com,1999:blog-447392662850613354.post4044731250158811021..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: Study of tri 13, 18 finds joy in short livesBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-447392662850613354.post-85881364076591771482012-07-29T23:08:55.622-04:002012-07-29T23:08:55.622-04:00When my daughter was in the NICU the best thing th...When my daughter was in the NICU the best thing the nurses did was create a fancy name tag for my daughter. Her name was written in sparkly marker & followed by a heart. It completely humanized her & helped with bonding. That heart became the way I wrote my daughter's name for 2 1/2 years and counting. It's now her 'signature' & an important link to her past.Angelahttp://halfpastnormal.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-38847118315316011622012-07-24T20:56:45.976-04:002012-07-24T20:56:45.976-04:00oops made a typo Ava is 5 monthes old. She is home...oops made a typo Ava is 5 monthes old. She is home with an full time nurse. She was released from the NICU 3 weeks ago.Connornoreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-38632826991337876022012-07-24T20:52:51.843-04:002012-07-24T20:52:51.843-04:00What a good article. My sweet girl Ava has Trisomy...What a good article. My sweet girl Ava has Trisomy 18. We were suggested no basiclly told to end the pregnacey but we refused and I am so glad. Ava is 5 and brings so much happiness to our lives.Connornoreply@blogger.com