tag:blogger.com,1999:blog-447392662850613354.post1279986380885439439..comments2024-02-25T10:24:30.868-05:00Comments on Special needs disability parenting BLOOM: One child, 10 conditions, no diagnosisBLOOM - Parenting Kids With Disabilitieshttp://www.blogger.com/profile/06901482901008135659noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-447392662850613354.post-73062590710215637452012-04-27T17:22:49.586-04:002012-04-27T17:22:49.586-04:00I look forward to meeting Julie and helping to adv...I look forward to meeting Julie and helping to advocate for more permanent funding of this important programme. Wish our family had been able to have this kind of coordinated support!The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-68170169613634921132012-04-26T16:37:27.912-04:002012-04-26T16:37:27.912-04:00This makes me even prouder of Cheo. I live in otta...This makes me even prouder of Cheo. I live in ottawa (although moving to toronto) and been a patient at Cheo myself<br />Cheo is paving the way I am glad to hear that you have found the supportCSIAmandahttps://www.blogger.com/profile/00804639122072895534noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-69396710142675623232012-04-24T17:57:30.914-04:002012-04-24T17:57:30.914-04:00Thank you for writing this article. We have a son...Thank you for writing this article. We have a son with complex medical needs and it has been through my own investigation that we have found things to help him. Across the board, medical "specialists" scratch their heads and no one wants to take responsibility for the care of our son. Frustrating doesn't even express the pain, agony and anger I have at the medical community for their inept care of our son. <br /><br />I have often asked the Children's Hospital we used to frequent if they had a medical care coordinator. I have been told countless times what a great idea this is and good luck finding anything like this in our state. Sigh... I am so excited that something I have often dreamed of actually exists and is working!OhGr8NowWhathttps://www.blogger.com/profile/06191143343153349881noreply@blogger.comtag:blogger.com,1999:blog-447392662850613354.post-73475801725551670312012-04-02T12:59:15.916-04:002012-04-02T12:59:15.916-04:00Thank you for this excellent summary of the challe...Thank you for this excellent summary of the challenges of being parents to a complex child and especially for you comments about a program that seems to be a win: win all around. It is true that complex children consume the lion's share of the pediatric health bill and in times such as these, engaging and collaborating with parents like you is the only way to improve service and decrease costs. I hope that providers, administrators and policy-makers start to listen and respond to experienced parents more. <br />Your daughter Kate is such a gorgeous little girl and I hope that her health continues to improve.Anonymousnoreply@blogger.com